"Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Paul,
So sorry you joined our group, but we are here to support you. I agree with the advice others have given you so far. Facebook is a little too public for me (might as well put an ad in the newspaper). A few of my friends & relatives have used Caring Bridge and that worked out pretty well to kept those on the need to know informed. During some parts of my OC journey, I would send updates to close friends and family via email. I did this also when my mother as well, and in both cases that was a great solution for me.
I also became an OCF volunteer and used my situation to educate others on oral cancer stressing that it could happen to anyone (I had no risk factors), knowing the signs and symptoms, and encouraging regular oral cancer screenings. Yes, early detection does save lives!
Who you tell and when is up to you. Do so as you feel comfortable. Perhaps have a family member send out updates.
Wishing you the best!
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
|