 Contributing Member (25+ posts)
Joined: Jul 2014 Posts: 42 | I know this is an older post, but wanted to post a suggestion in hopes that someone may find it useful for them. I also find Facebook to be too public as I didn't want everyone to forever think of me as sick or checking up on me and the majority of my "friends" are acquaintances. I made a list of people I needed and wanted to inform - employees, clients, and close family and friends - I basically asked myself if I would want to know if they had cancer or not. I then emailed or contacted everyone separately so that it was personal. I then created a Facebook group, set to invite only, and invited anyone on the list who had a Facebook account. This made it easier for myself and my husband to keep everyone updated in a more private way.
Female, Age 38, healthy non-smoker, rarely drank, regularly workout
May 2014 noticed irritation on tongue
6/18 saw doctor
6/25 saw ENT specialist got biopsy
6/30 Dx HPV P16+ ve SCC tongue cancer
7/9 CT scans, no visible spread
8/20 partial glossectomy with radial forearm flap, neck dissection 26 nodes sampled - results T2 N0 with mild dysplasia
4/2015 start to have ear pain
5/2015 recurrence
6/4/2015 surgery 29 nodes samples pN 2c
7/13/2015 7 wks of Chemo & Radiation start
| 
