She was having a CT about once a week. The last one showed no change in tumor size. They elected to stop the rads as it was really causing Katie's health to deteriorate. Physically, she's an absolute train wreck. She needs lots of bed rest and time to heal.

I've read about doing rads while the tumor is exposed. This might be an option, but I'm not very hopeful that it will be. My understanding is that the location of the tumor at the base of her tongue makes surgery on it very very difficult. Removal is probably impossible without catastrophic quality-of-life side effects. I'm sure that we'll discuss this option (debulking and radiation during neck dissection) when we next meet with the doctors.

The only good news we've had recently is that her liver functions are fine and her new nutrition doctor thinks she can start to slowly get back to trying solid food. We're waiting for some of the mucous to clear from her mouth first.


Caregiver/spouse to Katie B (age 39), non-smoker, casual drinker, HPV-
09/12 - Diagnosed SCC on right side of tongue. Stage IVb
10/12 - Partial glossectomy
11/12 - 2nd partial glossectomy, MND (3/28 nodes positive for SCC)
01/13 - RO and Chemo
04/13 - 2nd round of Chemo
08/13 - CAT/PET scans show mass at BOT
09/13 - Biopsy confirms SCC in tumor at BOT
10/13 - Erbitux, Cisplatin, Taxitere
11/13 - Tumor continues to progress
11/13 - "Quad-Shot" radiation therapy