Quick update: Dr. Lee has changed Katie's radiation plan. Instead of Quad-Shot, she's recommending another whole round (35 days) of IMRT. We had thought that this much more radiation would not be possible, but Dr. Lee thinks the physicists can design a plan to avoid much of the overtly dangerous consequences (like avoiding the eyes, optic nerves, brainstem, etc.)
We're both pleased and alarmed by this change. Pleased because it's considered a more powerful radiation treatment with a small chance of being curative, but alarmed because the tumor's aggressive growth has warranted this treatment.
At this point, any "long-term" side effects like necrosis of the jaw, or loss of teeth...things that you'd see 10-15 years down the road are moot. It's hard to accept, but it's the truth: if we get 10-15 years of life as a trade-off, we'll consider it a victory.
Caregiver/spouse to Katie B (age 39), non-smoker, casual drinker, HPV- 09/12 - Diagnosed SCC on right side of tongue. Stage IVb 10/12 - Partial glossectomy 11/12 - 2nd partial glossectomy, MND (3/28 nodes positive for SCC) 01/13 - RO and Chemo 04/13 - 2nd round of Chemo 08/13 - CAT/PET scans show mass at BOT 09/13 - Biopsy confirms SCC in tumor at BOT 10/13 - Erbitux, Cisplatin, Taxitere 11/13 - Tumor continues to progress 11/13 - "Quad-Shot" radiation therapy
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