Quick update: Dr. Lee has changed Katie's radiation plan. Instead of Quad-Shot, she's recommending another whole round (35 days) of IMRT. We had thought that this much more radiation would not be possible, but Dr. Lee thinks the physicists can design a plan to avoid much of the overtly dangerous consequences (like avoiding the eyes, optic nerves, brainstem, etc.)

We're both pleased and alarmed by this change. Pleased because it's considered a more powerful radiation treatment with a small chance of being curative, but alarmed because the tumor's aggressive growth has warranted this treatment.

At this point, any "long-term" side effects like necrosis of the jaw, or loss of teeth...things that you'd see 10-15 years down the road are moot. It's hard to accept, but it's the truth: if we get 10-15 years of life as a trade-off, we'll consider it a victory.


Caregiver/spouse to Katie B (age 39), non-smoker, casual drinker, HPV-
09/12 - Diagnosed SCC on right side of tongue. Stage IVb
10/12 - Partial glossectomy
11/12 - 2nd partial glossectomy, MND (3/28 nodes positive for SCC)
01/13 - RO and Chemo
04/13 - 2nd round of Chemo
08/13 - CAT/PET scans show mass at BOT
09/13 - Biopsy confirms SCC in tumor at BOT
10/13 - Erbitux, Cisplatin, Taxitere
11/13 - Tumor continues to progress
11/13 - "Quad-Shot" radiation therapy