Tammy, the surgery of which you speak only gives Katie a 5% chance of being curative. For us, at this time, it's not an option we want to consider, even if we could find a willing surgeon. This may change in the future.

Paul, Proton therapy was going to be our next step if the chemo shrunk the tumor. The chemo had little effect and the tumor has grown larger, leading us to treatment (IMRT) that we hope will shrink or eradicate the tumor. Proton therapy may be an option for us at some point. The first round of IMRT in Jan-March 2013 did appear to work on the first tumor on the side of her tongue. We were hopeful that the IMRT would prevent recurrence a also, but it didn't. This BOT tumor appears to be much more aggressive. Let's hope it works this time as well.