"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | It can be crazy frustrating when the hospital doesn't work together interdepartmentally. My father in law had a similar situation though they are very good at his hospital. The chemo dep would give him a schedule, then rads would give him a schedule, then surgery would give him a schedule. He has one number at the hospital. They should have all accessed ONE schedule and put their stuff in so he would have ONE paper to look at instead of three - and most importantly they other departments could see if they were running over someone's time.
Anyway - push and advocate - that is the only way to get things done. I am surprised they stopped the rads. How do they know it's not responding ? has she had a CT? Usually they will follow through to the end to determine response. Can they go in and debulk the tumor? Then finish the radiation - or do internal radiation? (this is done while she is open - they go in - remove what they can then cook what is left)
give her a hug for me and sending you luck and blessings that she begins to respond.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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