Oh am I glad I found this forum. I started on another site but they couldn't give me anywhere near the level of information I've already received here.

Tina77 - you made me laugh out loud. I too am a notebook keeper with different color pens and notebook tabs. I did it for my own cancer scare a while back. Now my husband wants to keep everything for him in a dropbox folder on the internet and it's adding to my stress level! I'm going to go out and get myself a new notebook tomorrow. You are not alone.

PaulB, thank you for confirming that the frequent starts, stops, and turns are "normal." I don't even understand a lot of what's in your signature line, but it's clear you've had a lot of experience with this. I'm not looking forward to what's immediately in front of us, but knowing that you have been through it is really encouraging.

Ambra - bravo to you for doing this solo. Thank you for letting me know what it was like for you. It gives me hope. I pray you get through your treatment quickly and smoothly.

Thank you again, everyone, so much.


Husband (46, fit, non-smoker. light drinker) is Hodgkins Stage IV 20+ year survivor. Here we go again...
11/13 - SCC Tonsil HPV-16, PET Right tonsil + 4? lymph nodes
12/13 - TORS & ND scheduled
1/13 - RT/chemo expected
12/32 - Retirement and grandchildren eagerly anticipated