Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. Glad you have found our forum to help you and your husband get thru this. It will be quite the journey so hold onto your hat and get ready!
You will learn so much important info on our site. Dont forget about the main OCF pages for info as well. Read and educate yourself about the disease and how it is treated. This will make you a strong advocate for your husband. Being a caregiver isnt easy, dont worry we will help you get thru this.
Glad to hear you are going to CCCs for treatment. Thats the very best place as they usually have the countrys top doctors and are most experienced with OC patients.
Dont be shy, ask questions and get them to explain everything to you until you understand it. Too often the patient and caregiver forget the doctors work for them and its ok to stand up for yourself. If you feel like you need the doctor to review things again, schedule an appointment and have them explain it until you get it. You both must feel confident and comfortable that the right decisions have been made.
Best wishes!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |