Kazy, first off: you've come to the right place for support and information. You are now officially part of our family and we'll take care of you.

People who've experienced exactly what you're going through will be chiming in shortly to help.

I'm going the leave it to the experts on tongue involvement to guide you in the specifics. But mainly I want you to know that treatments these days are very sophisticated and survivable. It's not going to be easy, but your youth, energy and good attitude are all great things in your favor.

Are you being treated at a Comprehensive Cancer Center (CCC)? Here's a list:

http://oralcancerfoundation.org/resources/cancer_centers.htm

We're with you every step of the way.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18