Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | The chemo they would most likely be giving him would be Cisplatin which is an adjunct to the radiation.
Since no one here yet has come back with a report on PBT I have no thoughts on that either. What I have read however is that it shows great promise as the treatment of choice for many cancers, particularly where healthy tissue loss must be avoided such as in the head and neck or prostate. The IMRT they give, as an adjunct to the PBT, probably isn't the whole boatload in contrast to those of us where it was the only radiation treatment modality.
Most treatment centers have some provision for housing so don't let that be an obstacle.
As I said earlier I too have Hep C and they never had to modify my chemo - I was monitored very closely however. Interferon is pretty tough stuff - some say worse than Cisplatin.
They did reduce it by one treatment. I had 2 vs. 3 because the tumor responded so well to the treatment.
Your husband can be a survivor too and have an even better life than would have ever imagined but he can't wimp out. He has to put on the armor, take up the sword and get the right mental attitude. There is typically no genetic relationship with oral cancer so his fight is unique and not tied to others so he throw the past out -this is his own fight. There are many of us here who are survivors and were advanced staging.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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