Thank you so much, your kind words have meant so much to me.
Yesterday the MO told me that if my kidney function/creatinene levels don't normalize, he is going to modify chemo #2 scheduled for Monday by starting smaller weekly doses instead of the big bag scheduled. He said there's less data regarding the efficacy of weekly doses.
The prospect of changing the treatment plan is so disheartening for me. Obviously I can't sacrifice my kidneys, I understand the reasoning, but it frightens me to deviate from the tried and true cancer killing mode we started out in. I know I'm engaging in black/white thinking.
On the positive side I've truly rallied, getting some hours in at work, and as of today I'm 1/3 of the way through radiation.......Yippee!
(((JUGS)))
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
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