Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im sure it must be very difficult to watch a good friend struggle. Its not the best situation. Im very glad you had a good talk with them and I do understand you are walking on eggshells. But...... being that you obviously care very much for your friend, you must speak up and be even more blunt. They need to understand this isnt anything to fool around with. Oral cancer patients can easily die when they arent treated properly. Oral cancers survival rate is only around 50% of all patients diagnosed will still be alive 5 years later. When I see someone who is bounced around like what you say has happened to your friend I see history repeating itself a few years down the line. I see a patient who didnt take their health condition serious enough and is putting their life in jeopardy.
I know its not easy to push someone who isnt in your immediate family to seek out other doctors but please think of it like this..... If this was reversed and you had a dear friend who knew you were making a life and death bad decision, wouldnt you be grateful to them for telling you? I would also refer them to this site for help.
Its great to have a rapport with a doctor. The best doctors dont have to be "nice" people, they have to be highly skilled. Good bedside manner helps but it isnt what will make a cancer patient well. How I wish your friends would spend just 5 minutes talking with me. I speak to oral cancer patients over the phone all the time. I will send you another message with some info to pass along to your friend.
Good luck!!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |