 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thanks for taking the time to explain everything! It helps to understand the situation much better.
I never noticed you were located in Hawaii, I just saw you were in the US so I didnt understand why they didnt go to a CCC immediately. Now I get it, Hawaii is pretty far away from the mainland and it would have medical care set up a little differently than how the states have it here.
As a friend there is only so much you can do to help. Hope your friend's situation turns out for the best. Im glad the daughter is computer savvy and can help get important info to her parents.
Best wishes to your friend!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
