Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I know you said a CCC is not an option but it really does make a big difference where a patient is treated, especially in complicated cases. I still say it would be a good idea to get them over to a CCC where a whole team of specialists will get together and discuss the patient on a case by case basis. They will all sit down and come up with a treatment plan together. This approach is what is used at the top CCC's around the country.
The top CCCs arent always convenient for every patient but there are free lodging places to stay nearby each one and also free airfare too. I just noticed you made other posts which said your friend already started their treatments. Your friend may want to check into a place to stay if their commute is an hour each way. There could be free places near their current treatment facility. Let me know if you need the links for the lodging.
If they already started treatments its doubtful they will get chemo as their appointment isnt for another 2 weeks. By the time chemo would begin, they would be half way thru rads. Your friend should call the chemo doc and tell them they need an earlier appointment, if necessary speak to the office manager or get on the standby appointment list. Im surprised their rad doc didnt wait until they saw a MO to start.
Wishing your friend all the best with everything!
PS.... A while back I sent you a private message (PM). Look at the menu bar that goes across near the top of the page. Click on the flashing envelope next to"My Stuff". Please make a signature when you can it will help us to help you. Detailed instructions are in the PM. Thanks! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |