Linda's fever peaked at 102.8 yesterday morning but was brought under control with meds. Pulse was at 135 at time of highest fever, but dropped to the low 90's. She was feeling very low yesterday eve and said, via pen and paper, that she want's to go home. I feel so awful for her, I know she is scared and far from family. As for communication with med staff, here's an example. Nurse; We are taking her off the Norco because her liver enzymes are elevated."
Me; "What does that mean?"
Nurse; "It means they're higher".
Oh, thank you so much. We have not been to impressed with this place at all, from the beginning, but we were told by the docs that it was the only place closer than Sacramento for trach weaning. We need to get her back here or bite the gas price bullet and move her to Sac. Setting up a meeting with the pulmonologist is unbelievably difficult. Disgusted!