OP "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | So, I got sidetracked before I finished my update. Linda is home now. She stayed 1 night in ICU and 3 nights in DCU and was discharged wed. Docs were talking about sending her to9 another facility to continue p.t. and o.t. but we said nope, she's coming home. One big headache has been that her ileostomy is retracted, leaving nothing for the ostomy bag to enclose so that it leaks after a short while and had to be changed frequently. I sat down with the director of nurses at the rehab place and explained that to her. She assured me that they were capable of handling the situation. Well, as it turned out, the staff had no idea how to change the bag and get a halfway decent fit, plus, they had to use supplies that had been ordered for another patient. That is why the nurses were upset that they had to spend so much of their precious work time with her, and yes, David, someone has told them what their job is. Me! Anyway, at the hospital we finally got a certified ostomy nurse to show us how it's done and the bag she put on lasted 3 days. A good thing because Michael and I would have had a hell of a time doing it the way all the other morons did. So, now she's home and much more comfortable and happier and Michael and I have a lot more confidence in our ability to deal with the ostomy bag. Whew, what a ridiculous road we had to follow to get here.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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