 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Randy,
I am so sorry to hear your news. Learn all you can about treatment options from the website. Arm yourself with all the knowledge you can gain so you have a good idea what they are telling you and what to expect. You can do this just as many before you have. Live each day as if it is your last. Tell everyone you love how great that love is, each and every time you say hello or goodbye. Take the time to make the memories now. Your life may never be the same but in many ways life will have more meaning to you than you ever imagined.
I am hoping for the medical team to find the best possible plan of attack for you to have every opportunity to beat this beast the first time around.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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