Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Shelley,
Welcome to the neighborhood! Never feel guilty for complaining. This journey you are going through may be the toughest of your life, too. It is not easy on any of us, patients or caregivers alike.
I'm glad to hear your husband has finished radiation. There will be some tough times ahead but many have traveled the path ahead and it is ready. Be sure and have him replenishing the electrolytes, especially if he is working out. The body needs a lot of hydration right now and the muscle tissue has not even started deteriorating as the body heals. Lots of fiber and protein, too.
Best wishes for a speedy recovery for your husband and getting your life back to some sort of order and routine. It will come!
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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