Shelley,

Welcome to the neighborhood! Never feel guilty for complaining. This journey you are going through may be the toughest of your life, too. It is not easy on any of us, patients or caregivers alike.

I'm glad to hear your husband has finished radiation. There will be some tough times ahead but many have traveled the path ahead and it is ready. Be sure and have him replenishing the electrolytes, especially if he is working out. The body needs a lot of hydration right now and the muscle tissue has not even started deteriorating as the body heals. Lots of fiber and protein, too.

Best wishes for a speedy recovery for your husband and getting your life back to some sort of order and routine. It will come!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023