Hi Jade, I can't add much to the advice you have already had. Just want to say hello from Edinburgh. You have the right attitude for dealing with our health system here, which I think can be harder to confront than across the pond where getting second opinions is the norm. Some important advice that is often given here is BE YOUR OWN ADVOCATE. Too many people are happy to put their head in the sand and accept the reasurrances. The first GP I saw told me I was an unlikely candiate for cancer, being 51 and female (she obviously hadn't heard of HPV16), she advised me ask my dentist to have a look and luckily the dentist noticed that one of my tonsils was higher than the other. I'm not sure why the GP hadn't noticed that but the 2nd GP I saw referred me imediately to ENT, but this delayed the whole process and might have reduce the intensity of my treatment if I had not had node involvement.

The other really good advice given here is that you don't have cancer until a biopsy says so, so try to keep a calm area in your head telling you that there is probably a much higher chance that this is not cancer. Try not too panic.

Let us know how you get on. Sally


Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.