 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Eric, good write up. Thanks. Regarding the branched chain amino acids there is something worth noting. As nerves become chronically denervated such as fibrosing after radiation, muscles atrophy. The branched chain amino acids are synthesized by muscles as opposed to the liver for other proteins. As the muscles start wasting from damaged neves the cells can become toxic. One sign is a maple syrup smell when perspiring. A clue to switch to more pure forms of whey vs amino acids.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
