Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Little Bird - I'm so sorry this has been so rough on you and that your firm has not been as understanding as they should have been. It's is really difficult for anyone to even imagine what a survivor or caregiver goes through in fighting the cancer battle. You have taken some good steps already - with your plans for renting an apartment closer to the treatment center, coordinating the move in, and sharing the caregiving with your sister. It sure sounds like you do qualify for the Family Leave program and you've already talked to HR so that's good, too. You are a great caregiver and your Mom is fortunate to have you and your sister to help her through this difficult time. When I was in the midst of helping my son with his treatment, I had trouble figuring out my goals for the next hour or even minutes! I can't imagine someone asking me what I was going to do for the next year! I am sure when the course of treatment is set, you and your Mom and your sister will feel more in control and in the fight mode of taking care of what needs to be done. It's good to keep busy, but try to take some time for your own well-being and relaxation. Come here often and let us know how you are doing.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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