| Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Andrew, when my husband started treatment and was still eating, I used to record the amount of fluid and calories he was taking everyday. This was the only way I could tell if he was getting enough of both. Your appetite as well as your ability to drink will be impacted. Don't wait until your weight goes into free fall before tracking. It will be very hard to make your way back at that point. We were also advised to have him drink a couple of bottles of Ensure a day so that he would get the essential vitamins and nutrients. That was all before he got his PEG tube.
When you start the painkillers, make sure you ask your doctor about the bowel routine. At our hospital, they have a bowel routine that is a four-step program. In treatment, the body is on a delicate balance, a bit too much laxative and there may be diarrhea and dehydration can result; too little laxative and the body may get horrible bowel cramps. It sounds complicated but you will get the hang of it.
Good luck, you can do it!
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | |
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