| Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Only a dozen or so places have Proton therapy in the U.S. It's expensive to build, large, and is twice as expensive as other EBRT technologies. The only place near NYC I heard having it is ProCure in NJ. None of the hospitals in Manhattan have it, that I'm aware of, and looked myself 6 months ago. To my understanding, new radiation technologies do not need to have extensive Clinical trials like Chemo does for FDA approval, and just has to meet current standards under FDA 510(k) clearance that it can do the same type delivery it is meant to be used for, so that may be another reason why some are waiting.
Glad you received a copy of the pathology report, and noted the errors made. That seems unusual, but you have to be your best advocate, as you probably realize.
Good luck on Wednesday!
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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