We went months being jerked around because nobody would listen to me and Kevin was in complete denial. The docs all said there was very little chance it could be cancer because he was not a drinker or a smoker. It took from April to July for a diagnosis. By then it was StageIV. He went from the one large node in April to the whole side of his neck having swollen nodes all the way down to his cervical collar. I was fuming and they knew it. We left that ENT and moved on. Here we are, moving on and living life.
Hang in there and try not to stress about what has happened. You need positive vibes right now!!! Look forward and press on!
Kathy

Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14