| Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2012 Posts: 214 Likes: 1 | Andrew,
Good luck on the treatment. I have just went through it, and it is no picnic.
1) You will need help. Driving on chemo is doable but I don't recommend it. For me it was a no way. Another set of ears in room with the doctor goes a long way on getting it right. I had my wife with me on every visit. Someone needs to push you hard. You will have no appetite and it will hurt to eat but you must.
2) Chemo plays tricks on you. Create a log sheet of drugs that you take and when. Believe me you will not be able to remember what you took and when. Take the pills as recommended. Getting behind is the problem. Taking them after your sick is too late.
3) Get some boost, Ensure, other liquid drinks and start drinking them now and go as long as you can into treatment. At some point you might not be able to swallow but a few sips of water. I, and many others, had to get a peg. It sucks, but it works. It may take a week to get it, so don't wait until you can't eat or drink, you will have to make that call before then. Every day got worse until about 3 week post rad for me.
4) Post often and ask questions. If you don't post, we can't help. Somebody here has been through just about everything. I really pity the people that had to go through this blind.
Hockey Dad 43, No smoke, Small BOT HPV+16 8/30/12 Biopsy found SCC in Lymph node (removed) 9/19 DX 4a T1N2aM0 10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15) PEG tube in 11/7. Out 1/4, Back at work 2/4/13 PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
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