Contributing Member (25+ posts) Joined: Dec 2012 Posts: 26 | My diagnosis was very similar to yours and I underwent 35 rad treatments concurrent with Cisplatin weekly. Subsequent CT scan (November 2012) was very promising. PE scan is in two weeks.
Both the ENT, medical oncologist and the rad/oncologist were emphatic on the PEG tube. I was having swallowing problems before treatment started but at about week three I could no longer tolerate the pain. It was excruciating. None of the doctors told me to continue swallowing water or other liquids in small amounts so I relied totally on the PEG tube. I lost about 25 pounds (about 17% of body weight). Without the PEG tube I would have been hospitalized for dehydration and/ or nutrition. Unfortunately after my throat healed somewhat I tried to swallow and nothing went down. So I am now looking into treatment to help me return to at least some semblence of normal swallowing. My doctor said large base of tongue tumors often result in swallowing difficulties and I sure have them.
My very best to you. It's no "stroll ine park"...just take a day at a time.
y advice is to get the PEG and swallow as long as you possibly can and then some. You are not a large person and you would not want to interrupt your treatment because of dehydration and/or nourishment issues. The PEG tube is a relatively minor invonvenience when you consider the seriousness of these head and neck cancers.
Best wishes, Mr Mike
WM age 69, Stage III sqamous cell, base of tongue (left lingual tonsil), (1) node positive, Dxd Aug 2012, 35 rad treat with Cisplatin weekly, final treatment 10-16-12, CT scan 11-18-12 good result, PET in Jan 2013, good result, Barium swallow test...no swallowing function.
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