Hi Nancy!

There have been many heated discussions about PEG tubes. Its a very personal decision. Im very pro-PEG but there are many who are anti-PEG too. I feel its always much better to be prepared and have this tool there before you need it than to have to wait for an emergency surgery when you are feeling awful and struggling with nutrition. Some members sail right thru without needing a tube while others need it right from the start. There is always the nasal tube as an option too.

Take some time to educate yourself by reading this site. You will find all kinds of important info not just here but also on the main OCF pages. There are treatment protocols which are made by the NCCN which your treatment center should be going by.
NCCN Treatment Protocols

Nutrition will be a huge factor in how easily you get thru this. Every single day you will need 2500 calories and 48 oz of water, minimum! I know it sounds like its too much but this is the least you should be taking in. Your age will hopefully help you get thru it easier too.

Get a full blood count including thyroid. See your dentist and get fluoride trays made any teeth pulled which are not in good shape. Get your hearing checked.

Always take someone with you to doctor appointments. Read here and on the main OCF pages and educate yourself. Line up friends and family. Anyone who offers to help write down their name and number and tell them when the time comes you will contact them.

Best wishes with everything you are facing!

Last edited by ChristineB; 01-03-2013 05:40 PM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile