Nancy,

I finished treatment 7 weeks ago and will have my PEG tube removed tomorrow. I would not have made it straight through treatment without the peg. You do not need the peg tube now and getting one is not a big deal. However it does take a week depending on doc availability. About 4 weeks in, eating becomes very painful. My advice is make the call week 4 and error on the side of getting it. Also the worst effects are the three weeks after Rads are done.

You will need a lot of help starting right now. Make sure you can call for help at all times from now until 6 weeks after Rads.

Write stuff down. Its so easy to make mistakes with meds. I made a log sheet with dates, time, and drug.

Put war paint on. This treatment is hard. One day at a time and you will get through it. Good luck.



Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!