 Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi Sue. I also have been thinking about you and Ron and wondering how you both were. I'm really sad and sorry for all you are going through and have been through. You need to contact Hospice. They will help you whether you decide to keep Ron at home or place him somewhere. I know you feel guilty with the thought of having to have him placed somewhere but you would also feel terrible if something catastrophic happened and he was home by himself. Please take care of yourself also. There are no right or wrong answers and you have to do what you need to do.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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