[quote=tina77]Hi all. I know I am usually a cheerleader here, but I am struggling for the moment, and feeling pretty down. Then I feel stupid for getting down because, comparatively speaking, I know I have been extremely lucky. Well the rational part of my brain knows that, the irrational side keeps whispering that I want my life back.

I can't talk to my "bio" family or friends about this, as they are all "rah rah, you're so strong", so I'm turning to the OCF family...

My speech has taken a down turn recently. Don't know why. My shoulders and back feel like I just did the hardest workout ever, and my neck is still swollen and feels like I am wearing a choke collar. Again, rationally, I know this will "all take time", but if one more person says that to me, I may punch them, then I'll just be feeling miserably in jail.

Some of you want to take a go at kicking me in the ass here? [/quote]

"Tina Mina Nina Noo" as the song goes! If you didn't have at least moments of feeling a bit sorry for yourself after what you have been through...I don't thing you would be human. We are all here to hold you up...not kick your ass, girl! All of us "victims" of this disease, including caregivers, have been down more than once. People here will lift you up when you need it. Nobody cares how big, bad and tough anyone is...we just respond because we know. Just wait for spring...the best time of the year and the days are getting longer. PM me if you would like to hook up with a fellow Canuck from Winnipeg, who has some pretty inspirational insights from time to time and even plays in Edmonton at times!

Be well but be vigilant!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023