 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Shayne, welcome to OCF! I am so sorry to read your post! What terrible news not just for your mother but also your father. This must be extremely difficult for you! I hope you have a good support system as you will need help getting thru this. Many caregivers will seek out therapists and take anxiety medications to help them thru the rough times. Of course we are here to lean on as well.
Dying of oral cancer is not an easy death. I would suggest getting hospice involved as soon as you can to help. Its not too early to call them for some guidance. This may not be relevant and I apologize if it sounds ridiculous to you but have you tried to take your mother for a second opinion at one of the countries top cancer centers? If you would like the list please let me know and I will post it for you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
