I thought he was probably dehydrated. Soooo important. Maybe when he gets some fluids in him he will realize how much better he feels. One thing our RO did was put Kevin on a preventative script of Diflucan. It seemed to keep any mouth infections at bay. He still had the sores and used a ton of the magic mouthwash, and rinsed constantly, but he didn't get infections as bad.
I'm so sorry you are having such a hard time with this. It's different for every patient. Try to be patient with him, but, good job calling in reinforcements!!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14