Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | So glad your husband has you as his caregiver!!!! He is one lucky guy!!! You are doing a great job of putting on the nurse hat from He** and doing what is necessary in the best interest of your patient. Thats what you have to do to get him thru this, pull out the big guns. Quitting is NOT an option and he will be thankful down the road when he is well again.
In so glad your husband has been hydrated. It will help him to feel much better. Dont forget to push those calories too. If he isnt getting at least 2500 daily, it may be necessary to speak to his doc about a feeding tube weather its surgically done thru his stomach or a nasal tube. Its just another tool to be used to get thru this.
His pain must be managed. It doesnt not help the patient one bit to be in pain. Ask his doc for pain meds. He may need the fentanyl patch. It gets changed every 72 hours and will take about 24 hours to kick in. Follow directions exactly! No long hot showers or baths, never cut, tear, fold or rip the patch. It starts at 12.5 mg and goes up to 100. He may need 50 to help manage his pain, dont worry if the patch goes up over 100. At my highest I was on 150mg but only for a short time before I was stepped back down. He will need to be stepped up and back down off of this medication. Its strong, the strongest one available but it does work. By having the pain under control he will better be able to eat and go about his daily routine. Encourage him to get out even if its to walk around the block, its a change of scenery which can help. Try to set small daily goals for him to accomplish.
Hang in there its going to be a long road. Take it day by day. You have us to lean on. Good luck. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |