Stacey, I agree with trying to get a dietician involved. they can be very helpful. They are full of all kinds of ideas to help get a balanced diet when the patient have eating challenges. My dietician helped me greatly and stayed in close contact with me thru out all my treatments. She even would pop in to check on me whenever I was hospitalized, even 5 years later.

One thing that is very helpful to patients is to take another set of ears with them to their appointments. Patients dont always remember to ask certain questions and then they can also forget the answers. I know you have gone to some appointments with your husband, try to go to them all if possible. Another way to help educate your patient is to print out pages from the forum and casually leave them laying someplace so you can read them later. Of course this would be someplace the patient could pick them up without being noticed and the patient can check out the forum indirectly.

Best wishes with everything!