Hi Gloria. Sorry you have to be here but welcome. You can read my signature and see that I have been where you are. My husband also had almost the same diagnosis. Feel free to ask any and all questions. I knew nothing about this type of cancer when my John was diagnosed. You have found the best place out there for information, love and support.

What helped me was to just take things one day at a time and to not think to far ahead. Write down any and all questions for the many doctors you will be seeing so you don't forget anything when you are there.

My husband didn't want to know any of the potential issues or problems and had (and still has) no desire to be on the message boards. He would ask me a question and I would come here to find the answers. Best luck as you two share this journey together. Hugs, Wanda


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2