Hi Gloria,
I am so sorry to hear that you and your husband have to be part of our group, but please know that you are with family here and we understand everything you are feeling. You can read our signature lines at the bottom of our posts and kind of see who has been through what. There are many of us with BOT history and we are glad to speak to you via private message or on the forums. Some questions can get rather personal, so feel free to ask privately. Otherwise it's good to keep things here on the forums so others hear what everyone says.
Everyone has given really good suggestions, and your attitude seems positive, so you are ready for battle!
The eating tons now is quite important, then once he starts tx nutrition and hydration are very important. Even when he tells you he doesn't want to eat or drink, he has to, not doing so is not an option. He might think you are being crabby and bossy, but, that's our job!
Please, from care giver to care giver, reach out to others. I went this alone because I didn't find the site until the end of tx. It was so hard. That is why I am determined to help where I can. You have to remember to take time for yourself. There will be days that will be completely overwhelming and days that you both are ready for the battle. Take advantage of those good days and have a little fun if he's up to it. We didn't go out much because I was afraid he would catch every bug out there, but we had 3 kids in 5th and 7th grade, so the bugs came to us!
Hang in there and as everyone has said, we are here for you anytime. You now have a very knowledgable support system!!
Blessings,
Kathy