"OCF across the pond" Senior Member (100+ posts) Joined: Apr 2012 Posts: 111 | Hi Leelee
I also had a similar dx and I was where your husband is now, over Xmas and New Year. My mouth was so sore I couldn't eat or drink and I was very miserable. I didn't want to see anyone and my poor partner was in your position having to deal with me without being able to put it right for me. All I can say is hang on in there. It does get better, though it will get a bit worse first. I found that even water tasted horrible and I couldn't tolerate hot or cold. I found that the best thing to sip at was a small bit of ginger root infused in hot water. To keep the temperature right I used a thermos cup and topped it up with hot water periodically to keep the temperature right.
Do please ask questions. Everyone reacts differently to both the chemo and the radiation, but there will be people here who can answer questions on on all aspects.
The treatment is worth it. Sally
Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol. 10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12. 12/07/11 RIG. RIG removed 05/05/12. 4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
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