Hi leelee,
I'm glad that you have found this forum as I did a little to late, but still get alot of answers and ideas to help me through these difficult times. I do not have 5 years only a little over 1 year. Everyone is different and respond to chemo and radiation differently. I am still feeling the effects of the TX that I received. I know there are others on the forums who will be glad to help once they have read your message. Hang in there!

10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.