Thank you very much Sue. It does not scare me. I have been through hell, almost died, in ICU for a month, hospital 6 months, blinded, paralyzed, lost 100 lbs, and intebated, the bed sores took 2 yesrs to heal, just from 5 days of induction Chemo, so I'm vety cautious, and not as optimistic as I was, but I did pull through in one piece. I was thinking the same thing as far as the hospital wanting to do Erbitux, and radiation is a postive sign, but sometimes they are too agressive, risky, as I personally learned.

I'm glad you were able to pull through. I'm still undecided, and my original RO, who I just spoke to, thinks its aggressive at 50Gy. She and her partner are gong to look my case over again, and let me know what she thinks. I trust her more than the bigger, well known hospital, which did the induction chemo, which others drs think was a mistake. I'm the type to watch out for, since things seems to happen to more to me, and more severe than others probably due to underlying medical conditions.

I wonder what dosage they gave you the 2nd round? I read he 2x day fractionated IMRT has less toxicity, able to give more Grays, up to 80Gy, but read for Reirridation it is not better than once daily. The RO won't do less than 50Gy. I asked about cyber knife, and it's really IMRT, I think just the programming is different. Anyway, they don't do it here. Don't thinks it's a Sandard treatment yet, they do IGRT, which may be a little bretter than IMRT, and can do that too. Brach therapy is not done here, and RO doesn't think it would be any good. I have a number of good hospitals in NYC, but you have to send Everyhing just to set up an appt. I did sendvitvto Memorial Slosn Kettering, which is the number two cancer center in the US, at least by US Business Report.

Your story is amazing, and definately will factor in what you said. I can't take Cisplatin, which I had, due to my kidneys now.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs