Hello everyone, please excuse any newbie errors since I'm new to this board, but I'm not new to cancer. A little background info since I don't know how you add that.

I was dx in 10/09 with SSCN of the tonsil, base of tongue, valleculla, and three bilateral lymph nodes. I received TPF..taxotere, cisplatin and 5-FU induction chemo for 5 days, which hospilized me for 6 months, and unable go complete the rest of treatment. A PET scan was finally done in 7/1o, and amazingly came back all clear! Two months later, I had a recurrence in two left lyphn nodes, and ultimately 35 IMRT treatments completed in 3/11. Not chemo since oncologist refused due to my confition, and prior reaction. Follow up scans and FNAB in came back with cancer remaining, plus a new lymph activity. I had a radical neck dissection in levels Ii-V, neck muscle, vein, artery on 10/11. Pet scan all clear a few months in 2/12, but in 4/12 another lymph node was discovered. Surgery to level V done on 6/22/12. Two days before surgery, another swollen lymph node was discovered in level III and removed during the scheduled surgery. Pathology shows both SCC, no clear margin, and the mass/tissue, unsure now if it was a lymph node, had perinueral and Lymphovascular invasion.

Oncologist may do Erbitux, since i can't take chemo due to kidney, and immune system. Radiation oncologist said he can do 50Gy to levels III and V, having already 60 Gy to that area. He is afraid of artery damage and damage to the brachial plexus nerve. Surgeon is not confident he removed all the cancer beitwain was on the artery and afraid of damaging it. medical oncologist said I would be disqualified fir most clinical trials.

Sorry for the long intro. Looking to see what anyone else did for a 3rd recurrence, Reirridation or anything else helpful.