Welcome to OCF, Jane! Glad you have found this forum to help you with info and support for your mother. So sorry to hear she has undergone so much with this awful disease.

If she is losing weight and unable to eat, what about the feeding tube? That is a good temporary way to help get her the proper nutrition. Without taking in enough calories or water she will feel awful. Since she already has it in place her nutrition should be run with a pump several hours a day.

Best wishes with everything!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile