Am new & don't yet know all the abreviations. My mom had oral cancer--1st a growth in her jaw...surgically removed...got all the cancer...then on the next 3 mo visit another couple of spots found on lower gum and inside lower lip. Surgically removed...biopsies came back ok. 9 years cancer free....She lost her husband, my dad, of 64 years last June. Over the past few months she dropped a lot of weight..had her 6mo ckup...cancer's back. Dr did surgery on the spots and when he came out to talk w/us...the cancer is in the roof of her mouth, so part of her palate was taken..cancer is in the alveolar? bone....another spot at back of her tongue. Has
HPV growths giving her an awful time. Dentures..a huge problem, so PEG tube placed in. Going on 3 wks now and still so very nauseous....She will have a PET scan on Fri & begin chemo using
Erbitux. One Dr wants her to do radiation too, the other isn't pushing it. Dr's started her today on the anti-nausea meds..it is helping...but she doesn't want to even try to eat anything by mouth...says everything tastes awful...and too much trouble trying to get the food in (all pureed). She has macular degeneration, so she isn't able to feed herself yet. I have a brother & 2 other sisters. Us 3 girls are taking care of her & getting her to apptmnts, etc. We're devestated....confused...heartbroken...scared to death. The posts & info I've read on here have to be posted by some of the strongest & bravest people on this planet. I can't believe what many of you have endured. I just had to get this off my chest. Thanks for being here And my prayers are with all of you...each and every day. Jane