Hi John....sorry I haven't been in touch lately! Listen, seriously, you are only halfway through, and I don't want to scare you, but the worst is yet to come. The last week of radiation starts to get pretty bad, then after you're done the next few weeks are the WORST. We didn't realize this and started panicking, then I joined the forums and found out what was happening was normal.
You can apply for disability online. Our cc helped me apply and sent it in for me along with all of Kevin's records. He was approved in a short while, but remember, it doesn't start until after the 5-6 month waiting period. They will go back to your last day of work as your waiting period date, I think, but not sure about that. I applied after our 6 weeks of chemo and in our first week of radiation.
Being with the kids and all their germs is pretty scary John.
I'm sorry to be the bearer of yuck news. Please don't shoot the delivery person!!
Thinking of you,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14