Alex had one bedsore on his tailbone and the nurses put plastic skin on it and changed it every 2 or 3 days. I also put an eggcrate mattress overlay on the bed at home and leapt up and down at the hospital until he got an airmattress or ripple bed (can't remember which one now).

Great news about the clear margins and negative nodes - sounds very promising indeed.

Re pain killers. Does the hospital have such a thing as a pain management team? They are great at putting cocktails together that work and are less fearful of the big guns (opiates) that others fear. I can't imagine that Panadol even in combination would be strong enough for your needs - Might it actually be Panadeine Forte?

Alex managed pain with a combination of fentanyl(worked his way up to 150mg patches), long acting oxycodone ?10mg(Oxycontin) and short acting oxycodone ?5mg (Endone) to manage pain after lung surgery as well as radiation and tumour pain. Whilst the cause of Alex's pain was different, I suspect the severity was similar to Ida's situation. Something to ask your doctors about as a starter anyway?


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight