"OCF Down Under" Supporting Member (50+ posts) Joined: Nov 2011 Posts: 60 | One of the only times I've seen my husband shed a tear in all this was as he stared at a plate of food he would normally have LOVED. But he didn't want it. He wanted to want it so badly but he just couldn't. But he HAD to have something. It wasn't about the pain of swallowing, although there was some of that. It was about nausea or no taste or funny taste or just bad taste. It broke my heart.
We caregivers are at a loss for how to help. Most of us try various things along the way -- tough love, yelling, arguing, being nice even. Ultimately it all comes back to you though. Somehow, some way, you've got to do it.
Your guy is probably just doing the best he can. Is he young, like you? Hopefully he'll be there for you to keep butting heads with. Because if he isn't, then the only one left to argue with about this very important thing is, well, you.
All the best and I am so sorry you are having to go through this.
CG to husband Stage IV SCC left tonsil 11/11. Mets to 7 nodes on left, 2 on right, no distant mets. PEG, 7 weeks radiation and weekly Cisplatin ended Feb 10, 2012. PET 04/12 areas consistent with inflammation, complete response in nodes. Recurrence 09/13 pulmonary lymphatics. Died 22 Oct following an allergic reaction to Erbitux.
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