Thank you all for the encouragement. Kris is having his surgery Thursday 8th. We are having it done in the private system as I am not prepared to wait until end of April for a slot in the free public system. We do have some insurance so will manage with family's help. Kris will transfer back to the public system after 48 hours for the specialist services e.g. Swallowing/ speech therapy that he will need. This is huge salvage surgery, very scary. But, I do know we will get through this. I can't look to far ahead. Will always now be terrified for another reoccurence.
Are there any long term survivors of this surgery out there.
Tammy

Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!