Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | If your husband wants to struggle then he is doing everything right. Getting enough calories and hydration are NOT optional and he can NOT make it up the next day. I cant stress this enough. I always thought I could play catch up since I wasnt feeling good. I would always think tomorrow I will do better. Well one 'tomorrow' I found my son practically carrying me to a wheelchair and being wheeled into the hospital. There they took one look at me before they did ny vital signs and I was admitted into the hospital for malnutrition and dehydration. I actually felt so bad that I thought I was starting to die. Your husband is on the same path. It is not optional, every single day he MUST get a minimum of 2500 calories and 48 oz of water.
I would suggest you get him to read these posts or print them out for him to read. Let him see what so many other patients and caregiver have to say about this. I would also suggest that for 2 days he listen to you and that you get him the right amounts of intake and then ask him how he feels. I guarantee your husband will feel better. There was another member who also struggle and I warned them they would end up being hospitalized but they couldnt turn things around. It came as no surprise when they posted they were being kept in the hospital to finish their treatments.
Since he has a feeding tube why not do night time feedings? I have a feeding pump that I hook up at night and I let it run while I sleep. This is a very easy way to make sure he gets enough nutrition. Make sure the head of the bed is propped up for the feedings.
I hope your husband begins to get more in right away. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |