"Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Altgough my neck lymph node is smaller then yours it has started to infringe on nerve action. The pain I have experienced is excruciating and I am on a cocktail of pain relievers that only partialy help. I am begining to suffer paralysys of various parts of my mouth and swallowing functions and half my vocal cords are now permanently paralyzed.
I am at a CCC and beginning intensive treatment soon. All I can tell you is that when this starts getting bad, IT GETS REAL BAD! Get your ass to a CCC now. I cannot fully describe the cumulative effects of the pain, paralysis and nerve damage that I am experiencing and you can throw your eating nice foods schedule out the window soon, I am just barely able to eat now.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
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