[quote=Charm2017]SPOHNC focus appears to be different - local chapters meetings, no internet forums. Their resources links are quite comprehensive and include obscure sites - but THEY DO NOT MENTION OCF AT ALL NOR DO THEY LINK TO OCF even though they do link to other competing cancer sites like the former Yul Brynner foundation (they still have the old name even though it is now Head and Neck Cancer Alliance)
[/quote][quote=zengalib] It would be nice if they did refer people to OCF, because I think that there is room for both groups.[/quote]
SPOHNC does include a link to OCF on its "Supportive Care"/"Resources and Links" page. It's under the heading "Resources for Oral and Head and Neck Cancer" -- not under "Cancer Organizations" or "Support Organizations."

Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.