My husband was scheduled for his 2nd round of Chemo on Wednesday June 22, 2011 - he had already told all doctors he could not tolerate another dose. While we were talking he mentioned that he had been at a meeting the night before and a drug rep told him about
Erbitux - he told us the major side effects (but no risks) but we would talk more and start something the next week. I thought he said "herbal" and that it was new. I told many friends and talked about it on facebook. On Thursday when the doctor came to see John I asked what the name was...I laughed when he told me and told him I thought he said "herbal". It was never mention again until my husband called me at 6:59pm Friday night (6/24/2011)and said the ONC came by and since John felt so good and was in the hosptial it would be a good time to try it. The only free time I had to look it up was late Thursday (the first night I left his side because my back hurt too bad to sleep in the chair by his bed). I saw the less the 1 in 1000 and told a friend with our luck John would be that one. I knew he had mentioned it but we were to decide next week what our alternatives were other than Cistplatin. I do not know what my husband was told. My daughter talked to him from 8:30-9:00 and she thought he would start something Saturday so she talked him into staying until Sunday and not to try to come home Saturday. At 10:59pm on 6/24/2011 I get a call saying there was a change in my husbands condition. His reaction was in minutes and he is not the only one this has happened to.